Last night was our first night with no TPN, no Omegaven. He is still on TPN 6 nights a week, but this was our first "night off" from TPN since Boston told us we could go to 6 nights per week instead of 7.
Peter was hooked up to a "simple" bag of 10% dextrose with some added sodium so that he would receive enough fluid to compensate for the volume of TPN he is accustomed to at night. We were not sure how he would do... BUT HE DID GREAT!!! He is very chipper this morning and not a drop of fluid retention is evident. In fact, his urine went up an extra 100mL overnight. Low blood sugar was another potential concern, but we see no signs of that either. Toddler energy should be able to be bottled up and given to parents!
I am curious to see if his desire to eat/drink goes up on the day following no TPN. He is liking the choice in formulas to drink since Boston gave us some samples to try. It looks like we will be going now with Vital Jr. Vanilla, Vital Jr. Strawberry, and plain Elecare. We still get some protesting as we try to fit in 10 feeds of 60mL of formula a day, but the protests seems to be lessening with a choice of what he should drink. He is really enjoying his dinnertime feeds of baby food now too... again with an improvement when given a choice versus just being presented with what he is to eat. And of course the obvious thing is, why wouldn't he want a choice??!! Don't we all want some say in what we are given?!
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