Good times

We are back up to 55mL elecare per feed again! Peter's activity level is fabulous. He is taking little amounts of stage 1 baby fruits now as well. The key to getting him to willingly take the fruit by mouth was to CHILL it. We should have guessed, seeing as he will only take his elecare when it is cold.

We will be taking Peter to Boston in a few days. We hope to test his outputs to see how well his bowel is working. He has been having interesting labs the last two months. A month ago his CRP began to rise again. The CRP was 15 a month ago (up from less than 8 which is "normal" with the laboratory we use), and last week it hit 40. The mystery CRP rise is similar to what he did last spring, with a rise that has no accompanying symptoms. We don't think there is infection, so we will just watch him. His BUN (kidney lab) has been going up, so the doctors may have the lab examine his outputs to see if there is some tweaking necessary in the TPN to make the kidneys happier. Meanwhile, his bleeding times have improved again and his liver function tests are looking marvelous. Peter himself is behaving well, and that is the main thing. He is happy and active, and oblivious to the ups and downs of his labs this last month. Now, if he can get through his visit to Boston and back and have no funny incidents, that will be just super!

Peter's third birthday is coming up November 1 - All Saints' Day!!

new photos

Peter went to the park for physical therapy today. We went with a canister of Germ-X wipes to wipe down the handrails and put him to the task of trying to climb stairs and the ladder. The reward was to walk across the bridge at the top of the playset and to slide down the various slides. He did quite well for his first real attempts on a playground set!!